Iowa Lyme Disease Association
Education - Patient Support - Research - Medical Updates



Welcome! Our purpose is to educate with the facts about Lyme disease, its diagnosis and treatment and to provide support for patients and others
wanting more information. Our information is supported by credible research and we will keep you updated on any new research that pertains to
Lyme disease. Treatment options are listed and links provided so you can find a knowledgeable doctor in your area. Lastly we provide patient support
and encourage
interaction among patients and action by patients to support Lyme disease awareness.
Lyme Disease  Is   - - -

    1.  Is there Lyme disease in Iowa?
    Yes! Up until recently the black-legged tick, formerly called the
    deer tick, was the only vector of Lyme disease. Research in the
    last 4 years has proven the Lone star tick and the American
    dog tick can also harbor the Borrelia bacteria. In fact the Lone
    star tick transmits "Master's Disease", nearly identical to Lyme
    disease symptoms. Scientists have not proven the dog tick
    can transmit the disease to humans, yet. Research is currently
    under way to find an answer.

    Reporting Ld cases is mandatory! Your doctor is required to
    report all cases that meet the CDC surveillance criteria: (1)
    Erythema migrans rash, or; (2) One late manifestation
    (musculoskeletal, nervous or cardiovascular system) and
    laboratory confirmation of infection. Cases are reported to the
    county health department, the Iowa Department of Public
    Health, and the CDC.

    Often, if a doctor suspects Ld following a tick bite, and knowing
    the antibody type tests take 30 days to give an effective
    reading,   a doctor will administer antibiotics without
    diagnosing and reporting it.

    Plus, consider the fact that  prior to 2004, Iowa, like many other
    states, had its own criteria for recording cases of Lyme and it
    was too restrictive, leaving out most diagnosed cases, and
    keeping the number of reported cases low. This led health
    care professionals to believe Lyme was not a serious health
    threat, often assuming it was an  unlikely diagnosis in Iowa.
    Consequently Ld is still under-reported, under diagnosed and
    under treated in Iowa. Thus, it is not surprising that Iowa
    averages 20-30 reported cases annually.

    2.  How is early Lyme disease diagnosed?
    Earliest diagnosis of Lyme disease is from the characteristic
    erythema migrans (bulls-eye) rash which may begin a few
    days to a few weeks after a tick bite. This expanding pink rash
    may be clear in the center, taking on a bull's-eye appearance.
    Photograph it! Its unique appearance confirms a Lyme
    disease diagnosis. However it may appear as an irregular
    rash or multiple rashes. Antibiotic treatment must start
    immediately. The rash may be followed within a few days or
    weeks by flu-like symptoms; mild to severe headache, fever,
    general malaise, muscular aches and pains, swollen lymph
    nodes, fatigue and less commonly, nausea, vomiting, and
    conjunctivitis. However, it is estimated 20% to 40% of those
    infected do not get the erythema migrans rash, or the rash may
    be atypical, resembling sunburn or poison ivy.

    3. How is Lyme disease diagnosed if the patient
    does not have a rash and typical early symptoms?
    According to the CDC a clinical diagnosis is necessary since
    symptoms vary greatly, it's often relapsing, and current
    laboratory tests for Lyme disease itself are unreliable,
    producing false positives and false negatives. This is a
    multisystemic disease often mimicking other diseases.

    4. What is the treatment for Lyme disease?
    Lyme disease patients respond to certain antibiotics and
    treatment of early infection should be at least 8 weeks.
    Patients with late stage disease often require more extensive
    treatment than most medical literature indicates. An initial
    Jarish-Herxheimer reaction (a temporary worsening of
    symptoms) occurs and must be distinguished from antibiotic
    allergy. Improvement from antibiotic therapy helps confirm the
    diagnosis.
       
    5. Why is Lyme disease controversial? There's
    debate in the medical community about what Lyme disease is
    and how long treatment should last. The confusion exists
    because of the lack of a definitive diagnostic test and the lack
    of a clinical definition of Lyme disease. The Centers for
    Disease Control (CDC) definition was intended only for  
    surveillance purposes, yet it is often mistakenly used to
    diagnose or fail to diagnose the disease. Further, there is no
    treatment protocol for Lyme disease approved by the Federal
    Drug Administration.
           
    For more answers to frequently asked questions
    visit this excellent site:
    Frequently Asked Lyme Questions

  • Often misdiagnosed as: Fibromyalgia, M.S., ALS (Lou
    Gherig's disease), Chronic Fatigue Syndrome, Parkinsons
    Disease, Alzheimers, Depression, Arthritis, Auto Immune
    Disease, and many more illnesses. It is often called the "Great
    Imitator".  

  • The second fastest growing infectious disease in the U.S.

  • Internationally known as Borreliosis because it caused by the
    bacteria: Borrelia burgdorferi, a spirochete.

  • An infection is caused by the bite of an infected tick. Initial
    symptoms after the tick bite are usually mild and go away with
    or without simple antibiotic treatment - leading to the myth that
    the disease is not serious.

  • Complicated. Problems occur if an infection is untreated, or is
    not treated quickly or long enough, allowing the spirochetes to
    disseminate throughout the body. The result can be a very
    serious multi system infection, potentially long-lasting and
    often difficult to treat.

  • A disease that can progress to disabling and debilitating
    symptoms and/or present life-threatening complications.
    LYME DISEASE SYMPTOMS must be treated early for quick
    recovery. Flu symptoms, and a rash at the bite (one rash looks
    like a bull's-eye, others look like bruises), painful joints and
    severe fatigue are often reported early signs, but do not always
    occur. Cardiac problems; joint, tendon and muscle pain;
    numbness; headaches; memory loss; and severe fatigue can
    occur at any time, along with many other disorders.

  • A risk for anyone who spends time outdoors in tick habitat in
    the spring, summer and fall.

  • A potential threat If you are an outdoors  person, live in the
    country, farm, engage in outdoor activities, have children, or
    have pets, you need to learn the facts about this disease,
    prevention tips, diagnosis and treatment options

  • Transmitted by both the nymph and adult ticks. Peak periods
    are April through September, though unfed adults that live
    through the winter can bite on warm winter days. The Black-
    legged nymph is the size of a POPPY SEED, the adult the size
    of a SESAME SEED. Infection can be passed from the fluids of
    a tick through a cut or a scrape. Yet only about 50% of Lyme
    disease patients recall seeing the bite or the rash.
Prevention  Tips

    1. BEWARE OF TICKS. Ticks do not hop, or fly, they crawl
    toward a host when detecting body heat, or carbon dioxide.
    Ticks live in weedy areas. Tall grass, leaf litter, low shrubs,
    underbrush, and field and trail edges are favored. In highly
    infected areas, lawns may have ticks.
    2. WEAR LONG SLEEVES & LONG PANTS. Tuck the legs into
    your socks. Light-colored clothes make it easier to spot ticks.
    3. STAY IN THE MIDDLE OF TRAILS. Don't brush against leaves
    and weeds or hike through the underbrush.
    4. USE AN INSECT REPELLENT.  Follow manufacturers
    directions.Look for ones containing 25-35% DEET.
    5. CHECK FOR TICKS OFTEN. Crawling ones can be brushed
    off carefully.
    6. PLACE CLOTHES IN A DRYER. A 1/2 hr. dryer high heat cycle
    will destroy ticks which might be hiding in clothing.
    the scalp, and behind the ears.
    7. DO A THOROUGH TICK CHECK.  Ticks crawl upward until
    they are stopped..Check legs, waistline, bra line, and armpits,
    and ask a family member to help check scalp, back, etc.
    8. USE REPELLENTS AND CHECK YOUR PETS before they
    enter the house for crawling or attached ticks.
    9. HUNTERS AND TRAPPERS SHOULD HANG ANIMAL
    CARCASSES AWAY FROM BUILDINGS. Put a bucket of bleach
    water under the animal to catch any ticks falling off. Wear
    rubber gloves when field dressing or handling meat to
    minimize chances for infection.

***Disclaimer: The information provided on this web site should not take the place of any quality medical care. It is provided for patient information
only. ILDA does not engage in rendering medical services.
P.O. Box 221
Brighton, IA 52540
iowalymedisease@yahoo.com
Tick  Removal

  • ASSEMBLE A TICK KIT containing: pointed tweezers or a tick-lifting tool, a magnifying glass, a small vial (a film container is good), and an
    antiseptic. (Our ILDA sells tick kits, see our Lyme news page for more information.)
  • DON'T PANIC. Your chances of being infected are reported to occur at the end of the tick feeding cycle which may take hours.
  • DO NOT USE a hot match head, nail polish or vaseline on the tick. The tick will regurgitate and transmit infection.
  • REMOVE THE TICK. Grasp the tick firmly by the head with the tweezers as close to your skin as possible. Avoid squeezing the tick's
    abdomen. Pull straight out. Don't twist.
  • SAVE THE TICK in a container with a piece of damp tissue or a blade of grass. Refrigerate it , mark the date and where the bite occurred,
    and watch for any unusual symptoms in the next 30 days. The tick can be sent for testing through your doctor's office if any early Lyme
    symptoms develop.
  • CLEAN THE BITE AREA. Blot the bite area with antiseptic. If any tick mouth parts remain in the skin, be sure to tell your doctor.
  • WASH YOUR HANDS THOROUGHLY with soap and water.
  • CHECK WITH A PHYSICIAN as soon as possible.
  • REMOVING TICKS FROM YOUR PETS. Pull the tick out carefully with a tweezers, or tick-lifting tool. Save the tick and check with your
    veterinarian for further action. Don't let your pets run free in tall grass fields or in woods.
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Frequently Asked Questions